4th May 2016
Hello Friends, Family and Strangers!
Just thought it was time to give an update on Cody’s progress. We are currently in week 3 of chemotherapy and so far so good.
Up until a month ago, I thought chemo was just one medicine called ‘chemo’ and had no clue as to how it all works. So I would like to give you all a basic idea of what Cody’s treatment is like.
It turns out chemotherapy is the term used to treat cancer, but consists of several different types of medicines given at different doses and stages so that the blood levels maintain a steady up and down level.
So during his first week of chemo, he had a 3 day week where he was treated with Doxorubicin, Vincristine and Cyclosphoside – big words huh? It sounded like gibberish to me at first too, but I’m slowly learning the words and pretending to sound like an intellectual when i say them. Except for when I stuff up the words and make up my own like ‘Cancer-oxide’ or ‘Chemo-cristine’.
During the Cyclosphoside days he will experience nausea, so needs to take anti-nausea medication. But the anti-nausea meds can make him constipated so we need to give him Lactulose to combat with that, its funny, but awful at the same time.
Week 2 and Week 3 we were only in for half a day, for Vincristine – this is the drug that makes your hair fall out. Aah, we all know that one!
Ive been checking Cody’s hair every night when I bathe him. Monday night was the first night I noticed hair loss but it wasn’t a big chunk of hair like I had imagined it to be. I rinsed his hair and a couple of strands came out & thought it could be nothing, but when I rinsed a second time more hair came out. And now that I’m aware of it, I find when I stroke his hair now, usually a few strands come out. I’m assuming it might happen slowly. Ben is eager to shave Cody’s hair – and he will shave his own hair at the same time to match. I’ve had time to think about the hair loss and even though its like having a sticker on your head saying “Hey everyone, i have cancer”, his hair has always been thin anyway and he’s a boy, its really not a big deal to us.
So next week will be a big week of chemo. We will be in for 5 days worth of Cyclosphoside. Our doctor offered us the option of staying in clinic and traveling home each night, OR staying in the nice ward area and sleeping there for a week – We chose clinic. I have a Ben, a Jack, and a King Size bed waiting for me at home and that’s far better than what that the hospital can offer me!
A few people have mentioned to me that it seems odd that Cody is going in for treatment for a week here and then a day here so i hope this helps explains things better. Its all so his blood levels have a healthy up and down balance. The treatment plan that he is on has obviously been created to give medicine to Cody no more than what his body can handle. His blood work so far has been very much to plan, high one week, low the next, so that is good.
Cody. How is Cody going with the treatment? Well, if you came to our house any given day you would not know he was a sick little boy. He’s still full of energy and is usually running around the house or dancing most of the time. This is great and I’m cherishing it because I am fully aware he won’t be like this for long. He will soon get more anemic and sick. Surgery will be somewhere around week 6 or 7 and things will probably keep going downhill. Right now it is the calm before the storm.
When people say to me take one day at a time, I really do now, we have to! If I think about the ‘what if’s’ too much I would turn into a big Debbie Downer. So one day at a time, meaning today, Cody is a happy little chap, which means today is a good day 🙂
– Elise x