Days of the week

IMG_797115th May 2016

I never intended for this blog to become an ongoing sob story, but I guess talking about my 2 year old son’s journey through cancer isn’t exactly going to win funniest blog award – if there is such a thing…which I highly doubt.

We all knew this week was going to be a tough one, being 5 full days of chemo treatment. We were mentally prepared for the long week ahead and although it sucks, we just thought we’ll toughen up and by Friday that would be the end and we would go home and play happy families, right?… Wrong!

Monday when the nurses went to put Cody’s IV fluids through his line, they noticed they could easily insert the fluids into the line fine, but when they withdrew the syringe back it wouldn’t budge, as if there were a blockage of some sort. Same thing happened Tuesday. Again Wednesday.

By Wednesday, the Doctor was concerned about continuing with the Chemo for the day. The doctor held off chemo for 2 hours to see if she could get an X-ray for Cody, but she couldn’t get him one until the following morning. It was decided that although there was a blockage, the fluid could still go through the line and so he still had his day 3 of chemo. We got home at 6.30 Wednesday night, very tired. Still no time to relax because Thursday was bound to be a full on day and that it was.

Thursday morning, Cody started the day with his usual 2 hours of IV fluids. He then had an X-Ray to see what his port was doing. The X-Ray results indicated that the tip of his port line had somehow moved from the centre of his chest up to his neck!

After the X-Ray he then needed an Ultrasound and a Blood test. Just a re-cap, Cody hates being touched. To the point where he screams if any nurse gets too close to him, so at this point, as you can imagine he was very distressed.

After reading the results from all the tests, the Surgeon informed us that he would perform surgery and would either try to salvage the port line or put an entire new port inside him and it might possibly have to go on the other side of his body but they would find that out once in surgery. Thankfully, it didn’t have to be moved. He had his surgery and they put in a brand new port on the same side.

They wheeled him back to the room and he was still sedated. He wasn’t with us long before the surgeon then informed us he would next need another X-ray just to confirm the new port was in the correct position. He was then wheeled back to his room and then they continued to commence his 4th day of chemo. So summing up for the day of Thursday, Cody received an X-Ray, an ultrasound, a blood test, SURGERY, another X-Ray and a round of chemo all in one day.

Needless to say, Cody was not good Friday. He barely moved much. Vomited twice and barely ate anything. At 2 o’clock Friday, they started day 5 of Chemo on Cody as was originally planned. We finally got to leave hospital on Friday at 7pm.

This is the part of our journey where things are getting very real. We knew after 5 days of chemo that Cody was going to be low. But with Surgery on top of it all, it’s made things worse. He has so many medications to take, but the 2 most important ones right now are his pain meds and anti-nausea meds. If we can keep the pain and sickness at bay, then he will be well enough to eat some food. Then hopefully the food will help him have a proper bowel movement, which he hasn’t had in over a week – just to add to the party!

How is Cody right now? Up & Down. When the drugs have kicked in he is good. When the drugs have worn out or after he wakes up from a nap he is not good.

Our Sunday morning wake-up call consisted of Cody waking up at 6am crying. Ben saw that he had vomited. He sat in the shower with Cody while Cody shaked and cried. Cody is losing weight and with his bald head, its truly heartbreaking to see that he is now a fully branded cancer patient. We are now truly living the cancer life now with Cody. It is what it is. We can’t change it and there’s no one cure for it. The doctors have a plan of treatment for him and we just have to hope that it all goes well.

Once again, I don’t mean for this blog to be so depressing. It is however, real. It helps me get all my thoughts out. Hopefully, it gives everyone an inside view of what our family is going through and how our lives are changing.

– Elise x



14 thoughts on “Days of the week

  1. My heart goes out to you all, what a tough week. Thank you again for keeping us updated on Cody’s condition, please don’t feel like you need to hold back on getting it all out, I want to know whats happening, but don’t want to pester you with questions, and if it helps you even in the slightest then don’t be afraid to get it all out here. Love you all so much xox

    Liked by 1 person

  2. Glad your able to get your thoughts and worries out. Cody is a dear little boy. I think about you all very often hoping Cody gets well soon. And your all able to cope with the awful stress. Please know your in our prayers. Love Elise xx

    Liked by 1 person

  3. If I was granted one wish today, I would gladly take away Cody’s cancer and make him better. I hate this journey you’re all on. It’s a stomach churning, heart wrenching, cruel and stressful ride that no two year old or their parents and families should have to go through. It must be like standing on a very high cliff with one foot dangling over the edge. Your courage and bravery is to be commended. I think of you guys everyday and everyday I send out healing, wellness and positive thoughts to the universe for Cody. I know cancer is only going to be a chapter in Cody’s life, not the whole story.
    Love and hugs
    Deb xx

    Liked by 1 person

    • Thank you Deb, yes it really is like being on the edge of a cliff. I guess some of the hardest times is when Cody can’t express himself so he screams instead. But hopefully he will have no memory of any of this journey xoxo


  4. Dear elise, as marina said ,you should never have to say sorry for the things you write or the way you feel, as we are not even supposed to be going through such horrible things but we are as a result of our imperfections and the state of this system, but all the more reason to have a need to be able to express your pain and anguish, my heart feels for you all as you watch someone so small have to endure things even and adult would find so hard, is very brave of you both and even little jack, you are evermore in our prayers and we know JEHOVAH WILL CARE FOR YOU AS YOU GO THROUGH THIS JOURNEY LOVE FROM THE WILLIAMS FAMILY

    Liked by 1 person

  5. What a heartbreaking, gut wrenching journey you have to endure to fight this. But you are not alone, there are so many caring about you all. Little Cody is a trooper. We hope and pray there won’t be another ‘thursday’ like that. How horrendous for you all. I hope the weekend had proved some relief, and that his nausea has settled and he can eat. Call if we can do anything to assist.
    Huge hugs and love and prayers xoxoxoxo

    Liked by 1 person

  6. Oh, Elise, my heart goes out to your family. Thank you for sharing your journey with us. I hope sharing your words provides you with a sense of relief during Cody’s cancer journey. Thinking of you all. xoxox

    Liked by 1 person

  7. Hi guys
    Thank you so much for keeping us posted with what’s going on in your lives right now. May you know we are thinking and praying for you all at this very hard time. Lots of love Mara and Mauro Viola xx

    Liked by 1 person

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